Kim Dalton 

 

  Kim Dalton  1981 - 2005

A Tribute

I personally did not know Kim Dalton who lived in the South Coast of NSW, but knew of her and of her intense and long fight with a rare form of Cancer. Kim was twenty-one years old when she was diagnosed with Adrenocortical Carcinoma (ACC) in 2003. 

Kim was a multiple National and State Champion Black Belt Taekwondo competitor (World Juniors 1998, East Asian Games 2001 Japan, Yeosu International Korea 2002). She was the only member to have been awarded Life Membership of Taekwondo Australia Inc.  She was a 4th Dan Blackbelt in Taekwondo which is the ranking of an international instructor and was a Taekwondo instructor of more than 100 under 13-year olds at the South Coast Taekwondo Centre. Kim's achievements in Taekwondo continued during her struggle with ACC as she returned to competition in 2004, first at NSW and then at the Nationals. This was after two major surgeries, and again in January 2005,  after more surgery. 

Her journey of pain, frustration and despair was unique because it was also a journey of a young woman who came to terms with her fate, intellectually, emotionally and spiritually. During her illness, Kim wrote of her struggle with the disease that she named Fred the Freak. Her book, The Real Fight - A Memoir of A Life Interrupted is an incredibly honest and insightful account of what she went through as a patient, a daughter, a partner, a sister, a friend, a champion and a woman desperately searching for explanations, answers, and just the smallest sign of hope. Her book is more than an account of courage against adversity. It is a very perceptive narrative of a young woman unravelling weighty questions regarding the meaning of life and the meaning of a fatal illness, in an incredibly short space of time. One discovers in the course of reading Kim's biography, the becoming of a woman who is beyond her years in intellect, talent, wisdom and courage. 

Kim Dalton's biography has been recommended to the Board of Studies for High School students. It has already sold five thousand copies. It is available through all ABC Book Shops. 

You can also find Illawarra ABC's Peter Riley's interview with Kim Dalton at the ABC website.

The Real Fight - A Memoir of A Life Interrupted 

is Available at ABC Bookshops: http://shop.abc.net.au/browse/product.asp?productid=162405

 

 

 


The article below was written by Kim Dalton two years before she died at the age of twenty-two.
(with special permission from Rob Cooley)

Fight for your life

By Kim Dalton

They are the words no one ever wants to hear. They are the words that you do not expect to hear when you are 21, the words you do not expect to hear when you are an (apparently) fit and healthy Black belt competitor in Taekwondo. The words?  

“You have cancer”  

This was the situation I was confronted with earlier this year. My name is Kim Dalton; I am a 3rd Dan WTF Black belt. I have been practicing Taekwondo for nearly 10 years. I have represented Australia internationally three times and medalled in the Australian Championships (at some level) every year since 1996. I teach Taekwondo to little kids for a living. I have cancer.  

I probably should have known something was wrong, I probably should have seen a Doctor earlier. The signs were there. As early as October last year I had sense of not feeling that well, a vague ache under my ribs in the right side. By January 2003, this was a constant pain on my right side. By February I was sleeping poorly, having drenching night sweats most nights and was doubled over with pain on my right side. At this point, with the inherent feeling that something was very wrong, I stopped telling myself and those around me that this was some kind of injury or muscle strain I done to myself in Taekwondo training and went to see my Doctor. Doctors would later tell me I had been living with cancer for somewhere between six months to three years.  

Three weeks later, after numerous tests and scans and still an uncertain diagnosis, I was waiting in St George hospital for what I was assured would be a ‘major, major, major’ surgery.  

And it was, more so than my Doctors and I had imagined. The hope prior to my surgery was that I had a benign liver tumour, a condition that occasionally occurs in young females. This preliminary diagnosis was incorrect. The surgery was much more extensive than planned. The surgical team resected (took out) my right adrenal gland, right kidney, part of my liver, part of my inferior vena cava (the vein that returns blood from the lower half of your body to your heart) and part of my diaphragm (the muscle that controls your breathing). This was along with a very large tumour – over 1kg and 20cm and a couple of cancerous lymph nodes.  

The diagnosis? A locally advanced Stage IV (there are only IV stages) Adrenocortical Carcinoma (ACC). Haven’t heard of it? Not many people have. ACC is exceedingly rare, it has an incidence is around one case in every two million people.  The current literature on ACC generally begins with statements like ‘Adrenocortical Carcinoma is a rare and lethal neoplasm’ or ‘Adrenal cancer is a rare cancer that carries an especially poor prognosis’. As one oncologist (cancer Doctor) told me ‘you got one of the worst of a very bad bunch’.  

Two weeks before my operation I had been training very hard, despite feeling pretty bad. I was able to train for over two hours – fitness, stair runs, kicking and always my favourite – sparring. Nearly a month later when I was released form hospital, I had lost 12kg, mostly muscle mass, I looked like a skeleton and could not walk up the few stairs to my house without assistance.  

With a disease like ACC there are no experts, most oncologists in Australia would be lucky (or unlucky) if they see two cases of ACC during their career.  

The Facts:

  • ACC has an incidence of 1 in 2 million

  • ACC is a multi-drug and radiation resistant cancer – meaning that other than surgery there is currently no potentially curative treatments.

  • Even when all the tumour is resected (taken out) the incidence of recurrence or metastatic spread, sometimes years after the initial surgery is discouragingly high.

  • Due to the small incidence of ACC there is no incentive for drug companies to research treatments or fund clinical trials. There is no political clout in such a rare cancer. So nothing happens.

  • There is no accepted treatment protocol which means that Cancer Doctors are unsure of what / if any treatments to administer.

After many consultations with Doctors (I had eighteen medical appointments in a two week period) and an agonizing personal decision, I opted to use a little used chemotherapy agent called mitotane, to try to prevent spread or recurrence of my cancer. My Doctors and I had some trouble obtaining mitotane, mostly because the literature regarding its efficacy is mixed at best. Some Doctors swear by it and other Doctors do not believe it works. Mitotane is not a drug in demand enough to allow a profit margin for import to Australia so the government brings it in as an 'orphan drug' through a special access scheme, so it is available for patients with ACC. I am on long-term treatment with mitotane, which is a chemical derivative of the insecticide DDT.  

Cancer and Taekwondo  

I believe my experiences in Taekwondo are helping me in my battle with cancer. There are many similarities between ‘fighting’ in Taekwondo and the ‘fight’ against cancer.  

Think positively / Mind how you think  

In sport Taekwondo, most high-level players understand the importance of their ‘mindset’. In order to be successful in Taekwondo you must first believe that you can, you must have faith in yourself. You must be committed to achieving your goals and mind how you think – Cancer is the same. Hope is important and to stay positive is in my opinion and experience vitally important. During my time as an athlete I learnt to be positive, how to (to some extent) control how I think in pressure situations, and I also learnt how to be realistic about what needs to be done. I use these qualities I developed through Taekwondo every day in my ‘fight’ with cancer.  

Search for more knowledge  

To be successful in any endeavour you must be knowledgeable and always searching for more knowledge. Before I was diagnosed with cancer I was a student of Taekwondo. Watching at every competition and competition tapes for ways to improve, new techniques, trends in competition. I was always looking for new training methods and ways to improve my fitness.

Now I am a student of cancer. With such a rare cancer you have to be your own advocate and expert. I spend hours every week researching on the Internet, in books, emailing with Doctors and patients overseas. Within Australia I often find myself discussing my case with Doctors who know less about this disease than I do. If I had not done my own research and hassled my Doctors regarding treatment options and follow-up procedures I know I would not have received the ‘correct’ treatment and my chances of survival would be less. ‘Explore every avenue’ is a good motto for sport, cancer and life.  

Look after your body  

Every athlete knows how important it is to look after his or her body. The right training, looking after injuries, adequate rest and proper nutrition are all important aspects of an athlete’s life. Even more so with a cancer patient. Nutrition is important, I have to eat the ‘right’ foods or the side effects of my treatments are much greater. I need to be fit and strong to improve my health and make Doctors want to help me. It is also important to be in good condition in case I need another operation. Exercise and Taekwondo is also great for your mental health and stress relief, when you are training hard that is all you can focus on, there is no room for other thoughts – like an active meditation.  

Need for a good support network  

As an athlete it is important to have a good support network; family, friends, coaches and trainers all contribute to the success of the individual. A strong support network or ‘team’ is important to help a patient through the ups and downs of a cancer diagnosis, treatment and the uncertainties of survivorship. Just as it is important to have a knowledgeable and helpful coach – as a cancer patient the need for a Doctor who is committed to obtaining the best result is imperative.  

Need for funding to improve  

Since the inception of Taekwondo as an Olympic sport and the subsequent OAP/SEP funding from the AOC, Australia ’s committed athletes have been able to take their performance to another level. The combination of athletes and coaches committed to achieving plus the available funding to make these goals possible leads to results. The same is true for cancer. Currently, due to its rarity, there is no funding available for ACC, here or overseas. ACC is also yet to truly benefit from research done into other, more common cancers.  

This year I celebrated my 22nd birthday, statistically my chances of celebrating my 27th birthday are very slim, my 32nd birthday – even less. This will not change unless more research into novel treatments is done. Research and clinical trials will not happen unless there are funding dollars. I would like to challenge those involved in Taekwondo in Australia to help one of their own, a Black belt, a player, an instructor and in doing so help those who will come after me. The incidence of ACC is low but there is no known cause. It strikes people regardless of their age, race, gender and lifestyle choices. The money you donate to ACC research may help me but it may also help the next person out there to be diagnosed – it could be your husband or wife, son or daughter, friend or student – nobody knows. If each club organized a small amount of fundraising or a donation, this would be a great start to making a difference. As a fellow ACC patient told me – in the words of Ghandi ‘We are the change we wish to see in the world’. The change I want to see in the world is the development of treatments that work for Adrenocortical Carcinoma.

 


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